Fighting mito, finding hope

The Lily Foundation are the UK’s largest mitochondrial disease (mito) charity. Our vision is for a world in which every mito patient has a voice and access to treatment, support to improve their life and, ultimately, a cure.

The charity was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from mitochondrial disease at eight months old. Finding little in the way of specialist knowledge or support to help her through her ordeal, Liz set out to provide answers for herself and others in her situation.

What began as an informal network of family and friends has grown into a national charity that has raised an incredible £10.7 million in the fight against mitochondrial disease and today supports over 1300 patients and families. Run by a small team of dedicated staff backed by a medical board drawn from the UK’s top centres for mitochondrial research, The Lily Foundation forms a vital link between patients, doctors and medical science bodies.

Together we’re navigating the complexities of mitochondrial disease: today raising awareness across the globe; tomorrow unlocking the cure through pioneering research; forever supporting the mito community and empowering everyone to make a difference.

Find more information about The Lily Foundation at www.thelilyfoundation.org.uk.