Why We Exist

December 9th 2021 is a day we will never forget.

It’s the day we got the phone call from the doctor explaining the genetic test results had come back. The diagnosis… Angelman Syndrome!

The phone call lasted 2 minutes. We froze. We cried. We Googled and then cried a whole lot more.

Then we told our family and friends. Their support was overwhelming but everyone’s response was the same, “What is Angelman Syndrome?”

Why Support Us?

We are a small charity run exclusively by volunteers. We don’t pay any salaries and we keep our running costs to an absolute minimum.

This means that your donations go to help the people they were intended for. Being small means that every donation and grant awarded is very personal. We will award money quickly after it comes to us and by reacting so quickly to situations, we are making a tangible difference in the Angelman world.

The average extra costs of raising a disabled child in a family is estimated to be £581 a month ( Scope’s Disability Price Tag report in 2019). Extra costs include heating, insurance, equipment and therapies.

The current cost of living crisis has exacerbated this and as many as 9 in 10 families raising a child with disabilities are struggling. Where society and government isn’t set up to protect everyone who needs it, these families are overlooked and charities like ours must fill that gap, which is why we need your support.