What is Rett Syndrome?
Rett syndrome is a neurological condition which attacks previously healthy children between the ages of 1-2. These children go on to lose their speech, the use of their hands and their mobility through a progression which can last their whole childhood. Those who survive into adulthood need round the clock care.

There are currently no approved treatments for Rett Syndrome either to slow the progression of the disease or to manage symptoms. But thanks in part to the work of Reverse Rett, clinical trials of gene therapies which target the underlying cause of the disorder are now underway.  

About Reverse Rett
Reverse Rett is a patient advocacy and research organisation working to bring these and other treatments for Rett Syndrome to the UK. Since 2010, we have delivered over £8 million to Rett syndrome research in the UK and internationally. We work to identify and register every affected individual, provide clinical trial support services, fund the specialist CIPP Rett Centre based at King’s College Hospital, fund ongoing academic research programs and provide essential health information to families and caregivers.