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About DEBRA
DEBRA is a national charity and patient support organisation for people living with EB.
DEBRA provides care and support for people living with EB, and funds pioneering research to find effective treatments and ultimately cures for EB.


With your support we can fund:

Specialist healthcare
DEBRA works in partnership with the NHS to deliver an enhanced EB healthcare service through four EB centres of excellence located in the UK.

Member services
The DEBRA community support team works with the EB community, healthcare, and other professionals to improve quality of life for people living with EB. They offer support, advocacy,  information, and practical help at every stage of life. The DEBRA membership scheme includes holiday home respite, grants, and bespoke events to support people living with EB.

Pioneering research to find effective treatments
DEBRA supports research programmes that aim to find treatments that will slow, stop, or reverse the progression of EB. Repurposing drugs that are already available and successful in treating other inflammatory skin conditions in a key part of the research programme.