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About us:  
The Bone Cancer Research Trust is the only charity dedicated to fighting primary bone cancer and are uniquely placed to make a difference through research, information, awareness and support. 
For anyone affected by primary bone cancer, at any stage of their journey, our top-quality information and supportive network means no-one should have to feel alone or isolated. 
 
Our Heritage: 
In 2004, a group of families who had lost children and young people to primary bone cancer came together. They wanted to tackle head-on the fact that there was virtually no accessible bone cancer information, and practically no funding for research into this disease. 
Determined not to accept the status quo, the families pooled funds they had already raised, and together with guidance from Professor Ian Lewis (Consultant Paediatrician and Adolescent Oncologist at St James's University Hospital Leeds) the Bone Cancer Research Trust was registered in 2006. 
Since 2006, thanks to the incredible fundraising efforts of the primary bone cancer community, the Bone Cancer Research Trust have been able to commit over £8.3 million to primary bone cancer research, paving the way towards improving our understanding, developing kinder and more effective treatments and, ultimately, achieving a cure.  
 
Looking ahead to the future, our 2022-2032 organisational strategy, ‘More patients surviving. More patients thriving’, sets out our continuing aim to fund research into all forms of primary bone cancer, to strive for improved outcomes for patients, and to ensure that information and support are available to all those affected by this devastating disease.